Noah has had a great couple of days - his health is good, he has tons of energy, and his appetite is pretty much back to normal. But as soon as he reaches this point, it's time for another round of chemo and downhill from there. I'm especially nervous about this upcoming trip to Children's because he his having his 4th MRI on Thursday, which will show us what kind of progress he is making with the chemo - is it working, keeping the tumor cells at bay and killing any cells that remained after his extraction; is there any regrowth of the tumor...of course we're praying for an amazing outcome and for God's will, but it's hard not to be anxious. We have a clinic visit early Wednesday morning with Noah's neuro-oncologist; he will have his port accessed and labs checked, then we will be free to go for the day. Hopefully we will be able to plan a fun-filled day for him to enjoy and stay in a hotel that night. We won't know the exact time of his MRI until Wednesday afternoon. Hopefully it will be early Thursday morning so he won't have to go very long without food/drink, and also so that he can keep his chemo treatment on schedule. We are expecting to stay through Saturday, possibly Sunday, because of the set back due to the MRI. I am asking for prayer for the same things as before his last treatment (his health and response to the drugs, his appetite, strength, cooperation, etc.). Even though his white cell counts have dropped more quickly with each treatment and it has taken longer for them to climb back to where they need to be, he has not even seemed phased by it. Even when his red counts are so low that he needs an infusion, he still has so much energy and plays and laughs, and definitely hates being confined to his hospital crib...so thank you for praying. His resilience amazes me.
Since we are still not completely familiar with the Birmingham area we don't know what's available as far as fun things for Noah to enjoy (a zoo, kids' museum, etc.). If you have any suggestions please let me know - you can email me through the "how to contact us" link above, or post a comment on our guest book.
P.S. - Anytime Thursday morning, if you think about Noah, please lift up a special prayer for his MRI experience, that he will do well with the anesthesia, that all staff involved will take every precaution possible to keep him safe (once your child is burned in an MRI you will never completely trust those staff members again), that there will be no sign of regrowth, and that John and I will be at peace while Noah's in what has become a questionable machine - yet one that saved his life. I have to tell myself that the risks are worth it.
These posts are written by Noah's parents Jessica & John David Crowe. The default author is Jess, and those written by John David will be noted.