Hope everyone had a Happy Halloween! As you can see in the picture, we had a family theme going on. Big Darth Vader and the Storm Trooper just happened to be hanging around the RUMC Trunk or Treat event and jumped in the picture with us...it was great fun. Noah also went trick or treating at a friend's neighborhood on Monday night, and has now learned the meaning of Plex the robot's song, "too much candy's gonna make you sick!"
Noah had his first treatment with this new clinical trial on Tuesday. He did very well considering I had to be creative in entertaining him at the hospital for about 6 hours. He did well during his port access, waited patiently for his line to clear so the nurse could get a blood return, swallowed 2 pills like a champ...and was promptly rewarded with two age-appropriate Star Wars action figures. (I've learned over the past 2 years that this kid will go along with any medical procedure if he is promised a prize...not sure what that is doing to him psychologically, but my philosophy thus far has been "whatever works.") The only side affect he has encountered was an upset stomach, and I honestly believe that was the candy's fault from the night before. (After this week's treatment he will visit the Dr. once a week for labs/evaluation, while taking his meds every other day.) He went today for labs, tomorrow we go back to CHS to take another dose of medicine and labs, Friday we go back for labs, and then we are off to Memphis! We have purchased tickets to a Yo Gabba Gabba Live show as a surprise for Noah (he wanted to meet the characters of the show for his Make-A-Wish but they weren't all available.) Hopefully it will be a good experience for him. Saturday we will tour the Memphis Zoo, so it should be a fun weekend.
Tonight I have been looking at some of the blogs I'd posted throughout our journey, and God has reminded me of His faithfulness through it all. Even in my moments of ultimate weakness and exhaustion (many nights spent in the ER, days upon days of in-patient stays, several bad MRI results, 2 lengthy surgeries, miles of separation from my husband/Noah from his dad, watching my son loose his childhood to the affects of chemotherapy...) I have written about his faithfulness and goodness.
From a post I wrote one year ago: "God is so good, and this battle is not only ours but His…and in that we find comfort. The Lord can heal Noah through a number of means, but whether that is in this life or eternity we cannot say for sure. We are not promised tomorrow and we don’t know what a day will bring forth (for ANYONE), so we live each day to the fullest and spend as much time together as we can." This is an uncomfortably real and present truth that we are facing tonight, but despite the fragility of life we have a peace that passes all understanding, because we know WHO is in control, WHO we follow and trust, and WHO allows each and every breath that fills our lungs. Not one of us is promised that we will make it home from work, school, or that quick trip to the grocery store.
From last March: "While reading today, the story of Lazarus jumped out at me and as I read I was encouraged. Jesus said to His disciples about Lazarus,'this sickness will not end in death. No, it is for God's glory so that God's son may be glorified through it' (John 11:4). Jesus loved Lazarus, and yet He tarried, and essentially allowed Lazarus to die only to raise Him from the dead, 'so that you may believe' (John 11:15). I don't doubt His power and ability to heal, but I also know that He may tarry and He is often 'slow to act' according to my watch. As I wait on the Lord to completely heal my son, I am encouraged by the letters and comments I receive from so many of you who are praying and believing with my family for a miracle. And I see how even now God is glorified through the work He is doing in Noah. Thank you for all you are doing and have done to show us the love of Jesus."
These past two years with Noah have been such a gift and a miracle, considering his medical condition, and we have been blessed to have the perspective on life that God has shown us. We are in no way giving up on Noah, and we are still fervently praying and believing for his healing on earth, but we also know that He belongs to the Lord and Noah's life is in God's hands. Thank you for continuing to pray with us for his healing and for God's glory!
"For this child I prayed; and the Lord hath given me my petition which I asked of Him; therefore also I have lent him to the Lord; as long as he liveth he shall be lent to the Lord." - 1 Samuel 1:27, 28
"But may the God of all grace, who has called us to His eternal glory by Christ Jesus, after you have suffered a while, perfect, establish, strengthen, and settle you. To Him be the glory and the dominion forever and ever. Amen." 1 Peter 5:10-11
These posts are written by Noah's parents Jessica & John David Crowe. The default author is Jess, and those written by John David will be noted.