Progress

​8:00am - Noah had a rough night last night. He tossed and turned, talked and fussed, persuaded and manipulated to try to get out of bed. We tried everything to coerce him to sleep; he didn't get a nap yesterday so I knew he was exhausted. Finally at 2 am he dozed off with the help of some Benadryl. Then his CT scan was at 5am - so much for a good nights sleep! He did well for that and went back to sleep when we arrived back in the room. He is sleeping now thank goodness so I hope he can get caught up. Good news is the scan looked good so his drain will be coming out sometime this morning. He will not get a topical medication at the site so I'm hoping he does will with the removal and stitches to close up that area. He should come off fluids also, then we will hang out while he is monitored to rule out anymore headaches/vomiting, or any other issues that could arise after the drain is pulled. If all goes well, we could look at going home this evening or tomorrow. Now, this is wonderful news for us and we will all be relieved to be back home. But good grief does this make me nervous. Noah has already been requesting to walk all the time and wants to try things that he just isn't ready for. We will obviously have to restrict his activity at home, and that will not go over well with him.  As his "wobbly" feeling subsides he gets more confident, which is once again wonderful from one angle, but also frightening from another - one small fall would send us back to the hospital. We are also going to be watching for any changes in his incision, bleeding/oozing/etc. It will be quite a task to keep his little fingernails from scratching it. So even with all of my motherly worries, concerns, and stresses I am completely blessed at how this has turned out. Dr. Wellons is without a doubt an amazingly skilled surgeon and along with his OR team, nurses that have cared for him, (and the grace of God) Noah is doing so well that he is forgetting about the limitations he has had for the past four days. Praise be to God. 
 We have received lots of encouraging emails and Facebook messages and are so grateful to everyone who follows Noah's progress and prays. We are seeing our prayers answered one at a time. John and I have been overwhelmed by His goodness through the hard stuff! 
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11:30am - Noah’s drain has been removed and he is doing well. His iv line was also disconnected and I guess he wasn’t paying attention when that happened. I just helped him up to use the restroom and he walked a few steps, stopped, and started slowly spinning around with a big smile saying, “Look! I’m not tangled anymore! That makes me happy!” It was really cute. :) So we will hopefully be discharged around 6pm if all goes well for the next few hours. We will continue to keep you informed. It’s going to be a good day!
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6:30pm - Noah woke from his afternoon nap with a fever, and began vomiting shortly after he woke. He has thrown up twice already and says he feels sick again. We will stay at the hospital another night to have him monitored and make sure this fever goes. A fluctuating temperature isn't a cause for alarm, but one that rises to 101 or above and hangs around is...so it's best to stay put and see where this is going. He had a good afternoon with lots of visitors, which he enjoyed. Some special friends came to visit with gifts: a special Bead of Courage made just for Noah and LOTS of Star Wars toys! He was ecstatic that he was given "the Darth Vader ship to ride in," something that he has wanted for quite some time now. Thank you to the Newtons for such a special visit. :) 
Noah is disappointed that we will be here another night, but I tried to explain this is the best place for him to be when he doesn't feel well. He is sleeping again, along with Dad. :) Please pray that this is just a normal temperature change, and for it to go back down quickly. Also pray for his nausea and vomiting to subside, and for infection to stay far from him. John David will be preaching tomorrow morning and evening, and I know it will be difficult for him to be away from Noah while he is feeling sick...so you could say another prayer for him to feel at peace about this, and for the Holy Spirit to direct his words so those who hear it would be motivated to read God's word and grow closer to Him through the message.
Thank you for everything you have done and are doing to support our family! Much love to all.