I (Jess) received a call from Noah's neurosurgeon at exactly 1:46pm. These are the findings: Noah has a malignant tumor, it's called a Primitive neuroectodermal tumor (PNET). It turned out to be what Dr. Wellons suspected during the surgery. They have sent the sample on to Dr. Peter Berger at Johns Hopkins to review for confirmation. He said there were lots of different cell patterns in Noah's tumor, and I don't know yet what that means. The tumor board at Children's is putting together a plan of action, will include surgeons, oncologists, radiologists, therapists, etc. I have no doubt that Noah will receive that best care possible. Dr. Wellons was hopeful about the scan after the surgery, that they removed most if not all of the tumor, so that is the hope that we have now. We are going to Birmingham tomorrow to meet with about the plan for his burn, and will also possibly meet with the neurologist, Dr. Reddy, while we are there. We will wait until we receive word from Johns Hopkins before Noah begins any treatment, and let his incision heal. As I'm typing this Noah sits in his high chair, eating Pringles, and laughing hysterically at his silly dad. He is always so happy...just looking for something to laugh at. Because he is so young, he has no clue what the future holds; he is oblivious what treatments lie ahead, and that is the best place for him to be. He just wants to laugh at life, and I'm praying that we can laugh our way through this battle. We're still believing for a healing, however long it may take. Thank you for praying, and continue to pray for healing in Noah's body!
A quick note about my statement of being disappointed about the news segment last night: I was frustrated that we had so much good to say and it wasn't broadcasted. I do however want to thank all of the staff for the hard work they put into the segment; I know it wasn't easy creating a story from nothing in a matter of 4 or so hours. Maybe in the future we can do a story on the miracles that have occurred as God is bringing us through this difficult situation. Anyway, I appreciate the channel 19 news team and apologize for my candidness last night.
Here is a short excerpt from a book we were given at Children's called Childhood Brain & Spinal Cord Tumors, a Guide for Families, Friends, and Caregivers by Shiminski-Maher, Cullen and Sansalone: "PNET and medulloblastoma were once considered the same type of tumor that arose in different locations in the brain. Historically, medulloblastoma was the name given to this tumor when it grew in the posterior fossa and PNET when it grew outside of the posterior fossa in the cerebral hemispheres. For many years, the two names were used interchangeably regardless of where the tumor grew. Recent research has shown that the two tumors are biologically distinct. However, they are usually treated the same, although some institutions are using high-dose chemotherapy with stem cell rescue to treat PNET."
I will post the excerpt about medulloblastoma later tonight; I'm sure you can find tons of information online also. We still have hope, and we still trust God's plan for us, and we still believe Jesus is Noah's healer. Praise God for His sovereignty; we don't have to worry about this.
These posts are written by Noah's parents Jessica & John David Crowe. The default author is Jess, and those written by John David will be noted.