9 more treatments left!!! Noah is still doing well - hardly any side effects except hair loss. His Dr. told us today that Continuing to take the Avastin has helped prevent some of those side effects, like swelling of his brain. I am SO glad Noah has not needed to take any steroids...God has given both of us grace there!
Yesterday we decided to do something fun while Dad was in town, and we were given some tickets to the Barber Vintage Motorsports Museum. We did not think it would be that big of a place, and thought Noah would like to look at some motorcycles. When we arrived we realized, this is a serious place with some serious money invested into it! It was amazing, and was DEFINITELY not for a 3 year old who wants to touch and climb on EVERYTHING. There were about 5 levels filled with all kinds of motorcycles and cars. John was drooling, and Noah was trying to be as patient as he could...we lasted about 10 minutes. From now on I will do some research before we blindly head to a place someone gives us tickets to! You live and you learn...
Just to keep you updated on some of Noah's favorite activities: Lately he has really developed an interest in Star Wars. He has 2 older friends Mikey and Devin that have all the Star Wars guns and swords and movies, etc. and he wants to be just like them. He got a light saber and a Star Wars gun for his birthday, and he now only wants to use "pow-pow" stickers on his sticker chart. (We ran out of SW stickers today so he settled for Spiderman. I had to promise a trip to the store to re-stock our supply!) It is too funny to watch him try to recreate the positions and stances of the characters as they fight each other. And I think I've mentioned before that he often talks about going to "fight the boo-boo." Usually once a day he gets a handful of markers and crayons, tells me I need my medicine, and proceeds to take me to "Dr. Fiveash's office" (the bedroom). He tells me to lay down, gets his syringe (marker/crayon) and gives me the magic milk so I can take my nap under the big machine. (He is pretty good at making the loud humming sound he hears from the radiation machine every morning.) Then after he has shoved a marker into my chest a few times where a port should be, I am all done! Sometimes he even grabs his yellow stethoscope and tells me, "you ok!" It's really cute.
There are a few fundraisers planned for Noah; these are the 2 that I am aware of: Saddle-Up for Noah Family Fun Day will be held on Saturday, April 16th from 10:30am until 5:00pm. This event is hosted by Larry and Pam Berzett at P & L Farm located at 6315 Upper Snake Road, Rogersville, AL. They are encouraging people to "please join us for a Trail Ride (bring your horse!), Mule & Wagon Rides, Bands/Music, Silent Auction, 'Baked Goods' Auction, Volleyball, Horseshoes & of course Food & lots more!!! YOU DO NOT HAVE TO RIDE A HORSE...THERE WILL BE SOMETHING FOR EVERYONE TO ENJOY! DON'T FORGET YOUR LAWN CHAIR!!!"
The second event I am aware of is a benefit motorcycle ride being held on October 15th, and is sponsored by a motorcycle group called the Ghost Warriors from Arab. I don't have much information as of now, but since it is so far in the future I will post more information later.
We are so thankful for all of you who are planning and organizing events to help bring in more money for Noah's medical bills. We are praying that after Noah's next MRI, which should be about the first week of May, he won't need any more treatment. If...WHEN the radiation is shown to stop the growth of his tumors, he will just continue to have an MRI every 3 months to make sure everything is still stable. I'm trusting for that day when I can tell you that the cancer is not growing and he is stable, requiring no more treatment - for the glory of God!
As always, thank you for your prayers, gifts, encouragement...we are so appreciative of all who are caring for us at this time and we love you! Seeing the love of God through everyone who is loving us is one of the reasons I am still sane!! We couldn't do this without you, and know that you are prayed for and loved in return.
These posts are written by Noah's parents Jessica & John David Crowe. The default author is Jess, and those written by John David will be noted.