We arrived in Birmingham last night. We have been given a place to stay by the Homewood Church of Christ here in Birmingham. They own a series of apartments and offer them to families with medical crisis free of charge. It is a very nice place and we are so blessed to be here.
We received so many offers from some amazing people of places to stay during this new treatment. Thanks to all of you for opening your heart to us.
Noah had another MRI this morning and a spinal tap. The Doctors are looking at his spine and spinal fluids. Our hope is that the cancer attacking Noah is only in one spot. If it is spreading, the spinal tap will reveal it and the MRI will show where.
Currently we are in limbo. The scan came back with a few questionable spots on his spine. They are comparing todays image with Noah's past images and also passing them on to some colleagues for their input. The spinal tap usually takes 24 - 48 hours to get an answer. So we have a long night and day of waiting. We had hoped for a routine scan and an "all clear" report. We still hope to hear the all clear.
Our appointment with the radiation oncologist is tomorrow at 3:00PM. He will explain the process and answer all of our questions. After this initial meeting, they will schedule us for a "practice run" where they will put Noah to sleep and fit him for his mask. From what we have heard from other patients, it is a hard mesh cast that goes from the top of his head to his chest. Noah will be put to sleep everyday and the mask will hold him perfectly still during the treatment. If anything is found in his spine, he will be treated in both head and back with radiation.
On a lighter note, Jessica discovered that the D.I.Y. network, Food network and HGTV network are all beside each other on the cable down here. I heard her say with delight, "Oooo" at the discovery. Noah has his toys all over the floor and is singing every song he knows. As abnormal as this chapter in our life is, some things don't change : ) I saw a sign in the mall today (after we got off the carousel) that said "happiness isn't a destination, it is a decision." Not sure if I have settled into agreement with that statement, but I do know that even in the worst of situations, there are still reasons to smile, moments to laugh, and joy to be had.
Spread the word, Pray for Noah
These posts are written by Noah's parents Jessica & John David Crowe. The default author is Jess, and those written by John David will be noted.