We got great news this morning. One of Noah's doctors came into his room around 8 a.m. and told us we would be able to come home today. Not because he is any better, but out of compassion for him. He hasn't had a fever in seven days and his blood is clear of any infection. His neutrophil count is still very very low. Noah currently has .017% of an active immune system - which is better than what he had yesterday. They didn't want to see him in a hospital room any more than we wanted to be there. They let us leave on some strict conditions - continually monitor for fever, no crowds, no playing with the dog, no going around barefoot, etc.
We are glad to be home - Jessica more than anyone. Noah at least has had a bed for the last week. Jessica has slept on a fold out chair. She is a very tough woman - the toughest I know of any way. She will enjoy her own mattress and pillow for at least a few days. Noah is scheduled to have Chemo # 8 in nine days. It's not a long break, but at least we get one. Noah has ran from room to room all night. The first thing he did when we got home was run to his room and throw every one of his toys on the floor. Typical boy! He beat his drums, played mom's guitar and sang his own made up songs for us, jumped on all the furniture and got into everything he isn't supposed to. I think he is glad to be here. Currently he is laying on my pillow in my bed and we are in a debate about where he is going to sleep. I am bigger than he is which renders his argument invalid. As soon as I finish typing this I will enter the ring and wrestle this little boy into his room and his own bed which is so much better than doing it in a hospital room trying to get him into a hospital crib. I never thought I would be glad about having this fight, but tonight I am thrilled to get the opportunity.
This last week has been very hard. Thanks for all the prayers and support. We know that God has surrounded us with amazing friends - some of whom we have never met.
I want to share a quick story about an act of kindness shown to me I hope I never forget. On the way to Birmingham Wednesday night, my goal was to make it to Chick-fil-a before they closed at 9:00 p.m. I led worship at Friendship that night and was on the road by 7:45. I did not make it in time. I pulled into the parking lot at 9:06 p.m. The parking lot lights were off and the dinning area had chairs on top of tables. As I drove though the lot I saw people cleaning up and pulled into a parking space. I am a pretty stubborn person - many of you know that - I was determined to get some chicken.
Noah will not eat much hospital food. His favorite food is Chicken nuggets made by - guess who? I walked up to the window and looked in just at the right time to see a manager walk by. I banged on the glass and got his attention. I waved him over to the locked door. He opened up and asked if he could help me. I explained my problem. I have a sick boy who isn't eating well and if i could just get him some chicken it would make things better - if for just a moment. I told him I knew they were closed and I would be glad to pay whatever I had to to get it. He told me to wait at the door and walked away. He came back with a small bag. There were no nuggets left, no strips and no sandwiches at all, but he handed me a small bag with one hot fillet - just for Noah. He didn't charge me but just smiled and told me he hoped Noah was better soon.
Twenty minutes later I watched my son eat that chicken breast with a big smile on his face. It was one big nugget! To see him eat anything on his own gives me great pleasure. I know that manager didn't have to open the door or even talk to me. He certainly didn't have to give me anything. It may seem like a small thing to most people - but to me it was an amazing act of kindness I will not forget. You never know what your act of kindness can do for someone else. It may seem like something small to you, but for someone else it could mean the world.
So if you ever find yourself at the Chick-fil-A in Fultondale, Alabama at the Walkers Chapel road exit, tell the manager you wish more people in the world were like him - I certainly do.
Please keep praying for Noah. Pray for healing and strength. Pray for a cure.
These posts are written by Noah's parents Jessica & John David Crowe. The default author is Jess, and those written by John David will be noted.