As I posted below, yesterday was a difficult day. Noah was in a lot of pain and slept the entire day away. Just before the sun went down, he woke up and had a boost of energy for a brief time and decided he wanted to go out back to see what all the commotion was about (John and a few helpful friends were putting together a shed to solve some of our storage issues at the moment). He stayed outside for about 5 minutes, but quickly tired and we headed back to the bed. (This is the first time he has wanted to be outside since we brought him home from the hospital on Tuesday.) One of the hospice nurses came by to administer his nightly medications, and after she left I spent some time with Noah just talking with him about the things we do together. I reminded him how much I love having him with me all the time, and basically described our weekly routine step by step as we would live it. Going to school, grocery shopping, library and park time, visiting the church staff and playing with toys at home, etc. In the beginning he would acknowledge me with his eyes closed, with a sleepy uh-huh, or slow head nod, or a "yep." When I verbally walked him through the church, "ran" him into the large room with the drums where the "big kids" meet at night and play with him, his eyes opened wide and he said, "I like to play those drums!" So we continued to talk about what he likes to do and all the youth who chase him and play with him, Kit-Kats and M&M's from Ms. Susan and Ms. Ruth, Mr. Seth's tickle finger, playground time, and all the things that are comforting to him in his daily routine. By this time he had asked me to take him out of the bedroom and to the couch, where he rested for a while longer. When bedtime came John and I moved him back into our bed and just as my head hit the pillow something happened in him and he exclaimed "Hey Mom!! I love you!!" as enthusiastic as he could be. His eyes were wide open, very little problem tracking, and he talked a mile a minute..about anything he could think of...for about two hours. It was a wonderful gift to us. It was really him, with his sweet comments and he even laughed about a silly memory we have, saying, "that was so funny!" This was the first time I've seen him laugh in a week. While giving him his midnight nausea medicine, he looked at me and said, "Hey Mom, you know what Jesus says to you? He says, you are taking good care of me, and He loves you!" He said something similar to John as well. During this time he was free of pain, and periodically during the night he would wake and continue his happy conversations.
This morning his head is hurting again, and he has been sleeping most of the time. I am praying for another gift today like we received last night. God is good and faithful to supply all of our needs, and my love tank is full for this day. Thank you for your continued prayers for peace and healing, and John David or I will keep updating as we can.
With love and a grateful heart,
These posts are written by Noah's parents Jessica & John David Crowe. The default author is Jess, and those written by John David will be noted.