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Waiting on official MRI reading

3/29/2010

 
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​It's good to be home. :) Noah has been doing ok; he's still vomiting here and there, as I'm trying to wean him off the Zofran. It's just taking a little longer this time. He ate some yesterday and drank a little, but today he isn't wanting to eat much of anything (except ice cream). He's had a few sips of milk, and I'm praying the appetite will come back soon. His temp. is going up and down, so I'm watching that really closely. Dr. Hawthorne told us before we left on Saturday that she would expect us back around this Wednesday and Thursday, since it's harder for his body to fight sickness with each treatment. He has a pretty runny nose and a slight cough, so I'm guessing the fever could spike at any moment.
We are still waiting on someone to call about his latest MRI; not having the surgeon's or the oncologist's opinion is leaving my mind open for a world of worry.
We are about to go to his ENT to get some ear molds made to keep water out  (Noah had tubes put in 5/09) since he pushed his down the drain while Dad gave him a bath. **We're also having a hearing test since a side effect of the drugs is hearing loss...praying there is none of that! Thank you all for still thinking and praying for us; I'll keep you updated if there are any changes in his health. Hope everyone has an awesome week!

**Passed hearing test!


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    These posts are written by Noah's parents Jessica & John David Crowe. The default author is Jess, and those written by John David will be noted. 
    Thank you for reading through Noah's incredible story, and for the prayers of those who followed along in real time as he battled a terrible disease. You are loved.

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