Well, it's been a stressful day but still a blessed day so far. John and I didn't sleep well knowing Noah was in and out of sleep and calling for us as we left last night. We got a few tips on how to work the sleep number bed, so hopeful we'll rest better tonight!
We got called around 7 this morning to come up and sit with Noah; he had been awake for awhile and was pretty much unconsolable, screaming for us. So we got to come back to the PICU a little earlier than usual. His sodium levels dropped pretty low last night, so they're monitoring that and the doctor says he will need to stay in PICU again tonight. Jennifer (nurse) took out his art line, and it took quite a while to clot. John was helping hold Noah's arm down. When peaking to see how it was doing, Jennifer moved the gauze and blood squirted all over. Ok, John and I had rushed to the hospital without breakfast, or even a drink. Needless to say, John nearly ended up on the floor at the sight of the blood!
Noah has been really irritable today, frustrated, whiny, angry...he keeps hitting his head and trying to pull the bandage off. Please pray for him to have peace, settle down...if anything is hurting him I pray that God would reveal that to us. I'm having a hard time understanding what he wants or need...a very helpless place for me to be. That is the main source of my stress - my baby needs something, and I can't give it to him or even really comfort him. He was given some Benadryl and is hanging out with John so I'm praying that he will soon get some sleep!
Also, he is supposed to be drinking clear liquids to see how he will handle it, and we've only got about 3 sips down. He is asking for milk and ice cream, but he can't have those just yet. He is very hard-headed and won't drink what I'm offering.
Despite the stress, we had a nice surprise this morning. If you scroll down to the bottom of the page, I started a section about all the "God-sequences" that have occurred. I wrote about Noah's nurse Katie from Huntsville Hospital. She and her husband actually came today to see how Noah was doing. She had not received any updates so far, so we gave her the website link. I didn't get to visit with them, but John says they are amazing people of faith, and her husband prayed for us before they left.
I just want to take a minute to thank everyone at Huntsville Hospital...I'm not sure if I've typed this before...but because Noah was throwing up he was admitted there. While there, we were trying to figure out what was wrong with his leg. When U/S and x-rays came back fine, we really felt like a CT scan was needed. Because of that scan, Noah's life was saved. Our neurological surgeon told us if he hadn't come to Birmingham and started steroids when he did, he would have been dead in 24 hours. I am forever in debt to the staff at both Huntsville and Children's Hospital - the nurses, the doctors, the registration clerks, med-flight folks, the PICU staff...I could go on and on. Every bit of the timing was perfect. All of you were under the divine direction of the Lord, and I praise Him for that!
I think I've said a million times that I'm overwhelmed by His grace, His faithfulness, and the glory that He is receiving through my son's situation. Please continue to pray that God will be glorified in everything that happens. I will do my best to continue posting every God-sequence that occurs in the section below. God bless you guys who are keeping up with our story, and I pray you have the most amazing Thanksgiving of your lives. I know that I have never been more thankful than I am right now.
These posts are written by Noah's parents Jessica & John David Crowe. The default author is Jess, and those written by John David will be noted.