We made the trip down to Children’s Hospital early this morning for our post surgery check up. Noah had his stitches removed and was so tough while they took them out. He had the ipad to distract him while the nurse pulled them out and he sat very still and for a two year old I think he did pretty well! He didn’t whimper, cry or squirm. In fact – I was more nervous about it than he was. Nadine, his nurse, pointed that out to Jessica and I. We all had a laugh.
We have had a very, very good recovery. Noah has been full blast since we have been home. Our biggest challenge was to try to limit how active he has been. He is 100% little boy. He loves to run & jump, climb on furniture, jump off furniture, run up to furniture, climb up it run on top of it then jump off it and roll in the floor – then repeat. All Day, all night. In the back yard – he swings, slides, plays with the dog, plays in the dirt, etc. You get the point.
At times I forget that he has just come through brain surgery. I have to remind myself of how careful he should be. When I see him acting “normal” it is hard to tell he has had anything happen.
We have an appointment with his oncologist next Wednesday at 9:00 AM. We will be discussing further treatment. We ask for your prayers as we approach this decision. There are other treatment options we have not tried. Radiation is one. There are also experimental drugs that could be a possibility. We really don’t want to see Noah go through anything else. We want it all to be over. Please pray that we will have wisdom and discernment.
We have not yet heard about the pathology report. Dr. Wellons was confident that the growth he removed was the same thing as before. He is also confident that he removed all the new growth and the tissue surrounding it. That is great news! It is what we can’t see though, that concerns us. These cells, if left unchecked, will multiply and again grow into something that threatens Noah’s life. The best treatment is total resection. Let’s all pray that that is the case.
Thank you for all the prayers and messages of encouragement. We are so blessed as a family to be supported by so many. Noah received a package in the mail yesterday from a couple we have never met. Inside were several toys. One of these toys was a small stuffed puppy. He quickly named it Charlie Brown (his new favorite cartoon). He tried to take it in the bath with him – we had to intervene. He went to sleep with Charlie brown last night. I know this seems like a small thing, but as a father to see Noah comforted by an act of kindness from a stranger is somewhat overwhelming. I am constantly reminded of how much he is loved by things like this. The words “thank you” don’t seem to be enough – so until I can find better words – Thank you!!!
These posts are written by Noah's parents Jessica & John David Crowe. The default author is Jess, and those written by John David will be noted.