Everything is going well for Noah right now…well, as good as can be considering he has been moved from his home 5 days a week and has to be put to sleep every morning so the medicine can “shoot the boo-boo.” As long as I put that in a Star Wars perspective he is ok with it. He will get his play sword and gun, run around the apartment making light saber and gun noises shouting, “Fight the boo-boo! Get it! Fight!” Every morning of treatment gets a little easier; he is still slightly anxious while walking to the treatment room and he clings to either me or John until he goes to sleep. But there is no screaming or fighting, which means a lot of stress off of Mama. We have a super nice team that takes care of us at the UAB Radiation Oncology center. Everyone we come in contact with always has a smile and is willing to answer any questions we may have. Their love for Noah is evident, just as it is with the oncology clinic at Children’s, and John and I appreciate that so much. It is SO much less stressful to watch your child go through these treatments when the staff is gentle, caring, and loves your child almost as much as you do! Today Noah had an issue with his port; during his playtime yesterday he came to me and said his noodle hurt (he calls the line attached to the needle that accesses his port his “noodle”). It didn’t appear irritated where it was inserted so I didn’t think much about it, and didn’t remember it had happened until this morning when Noah started crying, “it hurts!” while the medicine was being pushed. The needle had slipped out of the port so the medicine was pushed under his skin and was burning. I felt so awful for him, but there was nothing John or I could do. We were afraid we would have to load Noah up and drive to Children’s to have him accessed again, but Miss Anita (his nurse anesthetist) came to the rescue! She worked the needle back into place, not causing him any pain, and we were able to continue with his treatment. I thanked God for her being there in that moment to fix the problem, especially because she has such a gentle way with Noah. It may sound like a small thing, but she took a huge weight off my shoulders this morning. Everything went smoothly after that, and we are now home and about to have lunch.
I was really worried about this part of our journey before we began, but the Lord has so far sustained me (and will continue to do so!) emotionally, financially, logistically, I could go on. He has done it through our friends and family, and people we don’t even know, but they love and pray for Noah everyday. I feel so lucky to be in this position with so much support and love. Cancer happens - to so many people every day, young and old, and I don’t know how families get through it without a huge support system, and without the Lord. I know I’ve said over and over that God doesn’t promise us sunshine and rainbows, but WHEN those hard times come He WILL provide and pull us through, - no matter what the outcome….and if we just let Him. I am aware that a lot of times these situations end in death, but even then we are promised a new life if we will just know and love the Lord.
When I am tempted to worry about our future, I am reminded that no one is promised even the next breath. I am so thankful that over the past year and 3 months my family has been “forced” to spend lots of time together. Maybe not in the most ideal environments, but we are together nonetheless. I get tons of quality time with Noah, and I am so thankful for that. John doesn’t get quite as much time with Noah as I do, but he does his best to make up for that when he can be present. I feel like our situation is much harder on John because he has to split his time between family, work, and traveling to get to one of those. I’m blessed to have a husband who loves his family first, and knows providing for us means being dedicated to his job (which just happens to be something he really enjoys doing!). He is such a hard worker, and I just want to publicly affirm him for being amazing! I love you John David Crowe!
Please pray specifically for John and what I mentioned above, and for our fellow apartment dwellers next door and especially just below us; the have no peace and quiet until Noah is asleep! :) (Right now he is tap dancing, clapping, and screaming his own praises - radiation hasn’t slowed him down, either.)
Thank you for everything and much love,
These posts are written by Noah's parents Jessica & John David Crowe. The default author is Jess, and those written by John David will be noted.