We spent the late afternoon/early evening in the emergency room. Earlier this afternoon Noah and I were driving home from having lunch with John, and Noah started saying, "Mama...mama...I can't talk anymore" in a very slurred, almost indecipherable way. He continued to attempt to answer my questions with these unintelligible phrases while the right side of his face began to look paralyzed, and while I attempted to NOT freak out. While successfully not having a wreck, I kept calm and determined that he could see, his right hand was not gripping as it should, and he looked like he had just left the dentist office (when I asked him to smile, the right side of his face did nothing). After a few minutes of trying to keep him alert and talking with me, he slumped down into his booster seat and began to cry and panic. He was aware of everything that was happening, and terrified that he couldn't form the words to tell me what he was feeling. I was outwardly unemotional, but inwardly I was dying because I thought, "this is it. This is what his ending will be like...losing his ability to communicate what he needs." And honestly that is my greatest fear: for him to be suffering and not be able to tell me. My heart was breaking. The episode lasted a total of about 2 1/2 to 3 minutes, and felt like an eternity for both of us, I'm sure. When I noticed his mouth beginning to move again, his words became more clear, and he sat up straight and began to calm back down. During all this I had turned the car around and headed back to pick up John. We all went straight to the hospital. Noah's speech has still not become what it was before the first seizure, which worries me. While in the E.R. he had another seizure, though not as pronounced. He was given a steroid dose and a hefty dose of anti-seizure medication; he will continue with both of these at home. We were discharged in time to move forward with our campout in the back yard. The night turned out well, but the events of this afternoon have left me wound up pretty tight.
Tomorrow we have lots of family coming into town, then a fundraiser to attend tomorrow afternoon. The Hope for Autumn Foundation is having it's annual crawfish boil and Noah is one of the children with cancer that they are sponsoring this year. We are very grateful that he was chosen to be a part of this event, and we are looking forward to a fun-filled afternoon, and praying it is free of seizures, headaches, and whatever else could possibly happen. Pray with me that Noah will have a great day visiting with his family (one of his favorite things to do) and at the event tomorrow afternoon. Thanks for checking in on us, and please continue to pray with us for a miracle!
These posts are written by Noah's parents Jessica & John David Crowe. The default author is Jess, and those written by John David will be noted.