Just under 2 weeks since his surgery, and Noah is doing well. After we got home on Tuesday, he was still dealing with his temperature going up and down quite a bit. He was still in some pain, and was tired most of the time. He has gradually begun to regain some of his energy and spunk, and his fevers are few and far between (about once every 24-48 hours). He is still not back to his pre-surgery self, and I'm not sure when to expect that to happen. Regardless, we are thrilled with the results of this surgery and give glory to God for the quick healing occuring in Noah's body. I have been able to get most everything unpacked and organized in our new home, with Noah sleeping so much after we were discharged. Noah and I got out of the house a few times last week, and he is quick to share his recent experiences and new incision with anyone who will lend their attention. He is very proud of his new "scar" and asks if everyone else has one as well. Yesterday Noah got to play with his cousins Evie and Aaron and visit with Grammy, Uncle Jamie and Aunt Aleesha. He had a great day and really enjoyed having so many people he loves in one place. He lets me know often that his family is important to him and what he loves most is spending time with all of them. We are thankful to be close enough that he can see his extended family quite often.
In other news, we had a scare last night: he was sitting on a bench at our kitchen table, and just fell off and hit the back of his head on the floor. He was screaming in pain, John and I began to panic, and I paged the nuerosurgeon on call. I'm sure she has had many calls from frantic parents like myself whose child has hit their head after a craniotomy, so she reassured me he would be fine, and children are going to hit their heads from time to time. I felt a little silly for being so paranoid, but better paranoid than apathetic, right? With some Tylenol and rest he felt much better. Now I make him sit in a chair with a back if he is at the table alone. :) Geesh.
John is doing well and working hard. Noah is not happy that he is back to work, and he protests every time John leaves the house. It's really pitiful. I've tried to explain that Dad has to work so he can take care of our family, so we can have food, a home, cars, and toys. This afternoon he scolded John for getting ready to head back to church, saying, "We don't need food!! Just toys! No food, no house, just toys!!" I guess he only wants John to work enough to buy toys. :)
We have a follow up appointment with his neurosurgeon next Monday; he will have the stitches removed then. I hope he will be cleared to return to school; he misses his classmates and teacher. We aren't sure what, if any, treatment will be available or best for him following this surgery. I'm assuming an MRI will take place in the next few weeks (one month or so after the last scan). We have received several emails regarding alternative therapies that are available, and if you have sent one of those, thank you (I haven't responded to very many emails lately). John and I are still trying to decide what the next step will be based on what would be best for Noah and our family. Above all we are praying the surgery removed every cancer cell from his brain and we will not need to make any more treatment decisions because no tumor will ever grow again, and he will live to be a very old man with an amazing story of how God used Noah's physicians along with His healing hand to spare Noah's life. For this child we will pray, for His glory to be made known, and for His will to be done. Thank you all for joining with us in prayer! I am beyond humbled and amazed at the evidence of God working in Noah's life and I hope that all who pray for him have been encouraged by this win...this "YES" that is so big to us!
These posts are written by Noah's parents Jessica & John David Crowe. The default author is Jess, and those written by John David will be noted.