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Thanksgiving Day - Post 3

11/26/2009

 
​I realize that Jodie sent out a prayer request for Noah - please don't worry it's not life or death. John and I have had a REALLY rough, stressful day. As I mentioned early today Noah has been very hard to console. I believe he's in some pain, and it's possible the steroids have made him pretty much miserable, and very hard for us to deal with. When John sent the message we had been in the PICU with him since 7am, we were standing up hunched over his crib for hours, stressing out, trying to restrain him from ripping out IVs and hitting his head, biting his fingers, etc. It took both of us to try to keep him calm. So we were at our ropes end at that point (neither of us had eaten much or drank much). The nurses have given him several different drugs to try to minimize his pain and calm him down; they really haven't had that much of an effect. The PICU doctor contacted neurosurgery and they said since his vitals were fine, his drainage levels were fine, that he should be ok. He's still getting saline to raise his levels, but they had to put a tube in his nose to administer it since he wouldn't swallow it. Anyway, John and I are struggling today. Still praying, standing on the word...but it's been a little harder. We appreciate your prayers and we'll keep you updated on our little boy!

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    These posts are written by Noah's parents Jessica & John David Crowe. The default author is Jess, and those written by John David will be noted. 
    Thank you for reading through Noah's incredible story, and for the prayers of those who followed along in real time as he battled a terrible disease. You are loved.

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