House arrest, Wii, and Going Bald
The pictures above are of Noah playing baseball on the Wii last night. He's a pretty good pitcher! :) We've had a lot of fun playing and just being together watching movies, etc. for the past few days since Noah and I have been under house arrest. We haven't had any visitors, even the grandmothers, for a while. We're trying to do everything we can to keep him healthy. When we left the hospital on Tuesday his white blood cell count was under 3000 (average counts for a "normal" person should be from 5000-10000). We go to Athens Hospital on Monday to check his labs again. Even if the counts look better, we're still not going to have any visitors; it's just too risky, after what happened last weekend. I'm not going to be getting out much either, in an attempt to keep myself well, and I will have my Germ-X with me when I do! John of course is around people everyday, but he's trying to take precautions as not to bring anything "unwanted" into the house. It's hard to do, but it's for the protection of our child and it's only for a season.
Noah's dr. spoke with me briefly before we left on Tuesday about the potential of genetic testing/research in the future. I am all for this, since the first thing I questioned when I heard Noah's diagnosis was, have I passed a "cancer gene" to my child? I've written before about my dad - he was diagnosed with an astrocytoma grade II when I was a child, and died in 1988 from it. His mother passed about 6 years later from breast cancer that had spread to her lungs and other areas. Her mother also had breast cancer and eventually died from lung cancer. Dana Farber Cancer Institue began a case study on my family shortly after my grandmother died, and found that she had Li-Fraumeni syndrome, which is a defect in a tumor suppressor gene and increases your risk of cancer. My died was suspected to have the syndrome, and I believe one of his five brothers was tested and has it as well...correct me if I'm wrong guys! All that being said, Dr. Hawthorne is very interested in my family history, and hopefully Noah and I will have some testing done in the future. She (Noah's dr.) did encourage me to be on the lookout and have regular dr. visits since I could potentially be a carrier of the gene.
I've been walking around the past 2 days with one of those sticky link rollers in hand...Noah's hair has started falling out and it's worse than a long hair cat! I'm constantly rolling his clothes, the pillows, basically anything his head touches...and his head. :) It's a game for him now. I'm guessing he will probably be completely bald within a couple of weeks.
We have been notified of several fund raisers that have been scheduled for Noah, and we are SO grateful to those who are organizing these events. The bills have started coming, and every little bit helps to offset the cost of keeping him well! I'll say it again - we have such an amazing community and are so thankful for all the support we've received. We thank the Lord for you daily, and ask that you be blessed in return. I hope everyone has a great weekend - try a time of "house arrest" with your family like we are...it's actually a lot of fun! :) We're going to get some takeout, watch a good movie, play some Wii baseball...good times. I'll post more after lab results on Monday. Be blessed!!
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These posts are written by Noah's parents Jessica & John David Crowe. The default author is Jess, and those written by John David will be noted.