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He is gone.

5/19/2012

 
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My calendar is empty. There is nothing planned for me. I ache and groan at the thought of this day without him. My eyes burn from the tears that speak the reality of his passing. I can't see beyond this moment, and I can't feel anything but sorrow. This desperate need I have to hold his little hand and touch his perfectly sweet, soft face will never, ever again be met in this lifetime.  So I cling to his "sleep sock," once his comfort which has now become mine. With it he touched his chubby cheeks and rubbed his sleepy eyes, and I feel like it's the only tangible thing I have left of him that grew with him from infancy.
It feels so wrong to have time to dry my hair, paint my toenails, all those things I seldom could do when I was caring for him. Our home is too clean; the silence here is painful and deafening, and the pain I am feeling is crippling. 
Morning is the hardest, because for a fraction of a millisecond after I wake I expect to be surprised that he has stealthily slipped into our bed while I was sleeping. I expect him to ask me for his morning snuggle. Then I remember, my stomach turns while my heart races. There is nothing I can do for him. I am still his mother but my arms are empty; this seems like the cruelest fate of any. But my love for him outweighs any anger and sorrow I could entertain, and his life song will never leave my heart. I miss you terribly, Noah. From my hair to my heels. One can never anticipate the depth of pain that comes with the death of a child. God be with me, Holy Spirit don't leave me. This is too much to bear. 


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    Author

    These posts are written by Noah's parents Jessica & John David Crowe. The default author is Jess, and those written by John David will be noted. 
    Thank you for reading through Noah's incredible story, and for the prayers of those who followed along in real time as he battled a terrible disease. You are loved.

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