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Hairloss

12/22/2009

 
Picture
​You're probably wondering why I posted this picture of the back of Noah's head. I'll get to that in a bit.
First I'd like to apologize for not posting anything in such a long time; we've had a week of PT/OT visits, Christmas shopping/preparation, and just normal life stuff. John and I had a great anniversary dinner at Ruth's Chris (we're high cotton now - thanks Abby & Courtney!), we fought the wait-'til-the-last-minute-to-buy-your-Christmas-gifts-traffic in Huntsville, and we took Noah to Santa's Village (where we did not see Santa), then ran into Santa at our church on the way home. Noah likes him from a distance but did not want to get close, so I'm glad we didn't wait in the line to see Santa while standing outside in 39 degree temperature!
I posted the picture above because John and I noticed a small patch of Noah's hair had worn away (a few days ago) and last night we realized the small patch had grown to be a 1x4" area that looks dry and irritated. We had no clue what was going on (why would his hair just randomly fall out?), and we remembered a report on a local news station about a woman who suffered hair loss (among other things) due to over-radiation from a ct scan at Huntsville Hospital. The hospital is being investigated right now, and we have contacted a staff member about this situation. Some people may think we're being paranoid by assuming he could have been given too much radiation, but it's happened to 60 other people in our area, and with everything else Noah has been through that "typically doesn't happen" we decided it's best to check into it. We are going to the hospital at 10am tomorrow to pick up a report that will tell us how much radiation he was actually given during his ct scan. If he was mistakingly given more than the normal dosage, this will mean that Noah was given too much radiation in his ct on Saturday 11/21 and then was burned during his MRI procedure on Sunday 11/22. I'm praying this was not the case. This could also more than likely affect his chemo. schedule which will start on Wednesday 12/30.  John has spoken with a lawyer who is handling many of the other cases that have occurred at Huntsville Hospital.
I have no idea what else could cause Noah's hair loss. Because of everything that has happened to him, I am assuming the worst possibility...please pray that whatever has caused this will not affect anything else in his body. If you have any other suggestions as to what can cause this please let us know. We will also contact his dr. in Birmingham in the morning about this situation. Please pray for God's will to be done in this. Hopefully our instincts are wrong and it's nothing to worry about!
I will do my best to post an update on this situation tomorrow afternoon/evening after we have more info.
I hope everyone is having a great Christmas week, and remember the "Reason for the season!" Tonight John and I were discussing how this "holiday" has become something it shouldn't be; I hope this year will be free of stress and full of joy and peace....and family. We have 2 miracles to praise God for this Christmas - His son...and our son. :)


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    These posts are written by Noah's parents Jessica & John David Crowe. The default author is Jess, and those written by John David will be noted. 
    Thank you for reading through Noah's incredible story, and for the prayers of those who followed along in real time as he battled a terrible disease. You are loved.

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